Eliza O’Neill is your typical 4-year-old girl who loves playing and is a huge snuggle-bug. The problem is Eliza has a rare genetic disease called Sanfilippo Syndrome that could cause her to tragically waste away before her parent’s eyes.  



Eliza's Family




There is a gene-therapy trial that could stop the disease almost immediately. The only thing standing between Eliza and this miracle cure is money. The trial is in danger of being canceled and is in need of funds.



In a desperate attempt to save his baby girl, Glenn reached out to a filmmaker in hopes that a viral video could save Eliza’s life in time. 


Eliza running



That filmmaker, Benjamin Von Wong, responded in the most  amazing way.  He dropped everything and flew across the world to live with the family and make Eliza’s video. 



Benjamin and Eliza bonded instantly, and he immediately knew what he was a part of.  God bless this family, the filmmaker, and all the people who are stepping up to help save Eliza and other children like her.  Our prayers are with them all.


credit: Glenn O’Neill




“Jesus said, ‘Let the little children come to me, and do not hinder them, for the kingdom of heaven belongs to such as these.’” Matthew 19:14